1. In 2010, I heard an interview on CBC Radio with Dr. Maureen McShane. She is a doctor who has been successfully treated for Lyme disease, and who is dedicating her own practice to treating others with Lyme. I was still healthy when I happened to hear that interview, but the information obviously stuck with me because after I fell ill, I remembered the interview and found it online. That interview literally saved me. It gave me the information I needed to get on the right path towards a diagnosis. I made an appointment with Dr. McShane herself, in N.Y. state, and travelled a very long way, uncomfortable from my illness, to have a consultation with her. She diagnosed me with Lyme, and that was the beginning of a long journey. The interview I originally heard is no longer available online, but here is a follow-up report and interview with Dr. McShane.
CBC Radio - The Current
Click on the green arrow to start the interview, and then move the bar to the 9:54 mark for the Lyme segment.
2. The International Lyme and Associated Diseases Society (ILADS) is an organization of physicians who treat tick-borne infections. These physicians treat according to ILADS guidelines, not the conservative guidelines set out by the Infectious Diseases Society of America (ISDA). This means that:
(a) They interpret blood work using broader criteria than the CDC (Centres for Disease Control). Therefore, more people will be seen as positive for the infection and will receive the treatment they need.
(b) They diagnose Lyme based on clinical symptoms, primarily. Lyme can produce many different symptoms, and can look different from one person to another depending on how their body reacts to the bacteria. Sometimes, infected people have negative blood test results. Therefore, the clinical diagnosis is most important.
(c) They treat with antibiotics until symptoms are resolved, rather than just giving a 2-4 week course of antibiotics.
Their website has a lot of very useful information. ILADS held its annual conference in Toronto in October, 2011.
3. Lyme specialists Dr. Steven Harris and Dr. Linda Williams discuss Lyme disease on a California radio station. Very informative.
4. There are various Lyme disease websites and support groups which can be found by doing a search on the internet. A few useful websites are:
The Lyme Disease Network (LymeNet)
Tick-Borne Disease Alliance
Lyme Disease Association of Ontario
Lyme Action Group (political activism)
5. The following is an excellent website for some general information on Lyme disease. It was created by a woman, Michelle Backes, who recovered from Lyme disease a few years ago. On the website, she has a link to her YouTube video (Part 1 and 2) in which she tells her story. You can also view the video in my Videos tab. I found her story to be very encouraging.
Michelle On Lyme
6. This is a website put together by a Canadian couple, Justin and Christa Vanderham, who have had very serious struggles with Lyme disease and a co-infection. Their incredible video is featured in my Videos tab or you can click on the YouTube link below.
Justin and Christa Vanderham (website)
Lyme Story - Treatment, Hope, and Success (video)
7. You will find stories on the internet of well-known people who have contracted Lyme disease and who are trying to spread the word.
Darryl Hall, musician
Perry Louis Fields, athlete
Sam Stosur, athlete
Brooke Landau, ABC weather reporter
Daughter of Joanna Kerns, actress
Husband of Rossana Magnotta, owner of Canada's Magnotta Winery
(Lots of good links on her website to radio interviews she has done.)
8. Some individuals who have contracted Lyme disease have created blogs on the internet. There are also many medical message boards to look at. Be cautious about what you read and remember that these people are not doctors. However, their stories can be encouraging, and you can often find practical tips on managing the illness. There are several blogs listed in the Blogs I Follow box to the left.
9. Dr. Marty Ross, a Lyme-literate medical doctor (LLMD) from Seattle, Washington, has an EXCELLENT website. There are many resources to be found there, including a treatment manual that can be downloaded for free. Check out his informative videos and articles. Dr. Ross offers consultations via Skype which could be helpful if you have a naturopath or physician willing to participate in your Lyme treatment.
See Treat Lyme and Associated Diseases.
You can also find Dr. Ross on Facebook under the same name as his website.
10. This is a great blog written by an LLMD from Maryland, U.S.A. He describes many of the Lyme cases he deals with daily. Interesting reading.
11. Columbia University now has a Lyme research lab. Their website has some good information, especially the Frequently Asked Questions section.
Lyme and Tick-Borne Diseases Research Centre
12. For those wishing to delve further into a study of Lyme disease, you will find much information in these articles authored or co-authored by Dr. Joseph Burrascano. Dr. Burrascano is a pioneer in Lyme Disease treatment. He has retired from his Lyme practice and is devoting his time to research. Lyme-literate doctors use his guidelines to help devise treatment plans for patients.
Advanced Topics in Lyme Disease
Lyme disease: point/counterpoint